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Charity Project - DEBRA ČR is a patient organization that has been providing a wide range of services, counseling and assistance to people with butterfly wing disease (EB) since 2004. We accompany small and large fighters who have been fighting the incurable disease EB since their birth. In this way, patients do not know a day without pain, yet thanks to the help of others they can live as much as possible, suffer as little as possible. EB is a rare congenital inherited vesicular disease. People with EB have very fine, sensitive and easily vulnerable skin. Even mild pressure or friction causes the formation of blisters and painful, open wounds on the skin and mucous membranes. Manifestations of EB are very diverse and affect the whole organism.
Code:  NEZI0069

DEBRA CR

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